What is ONC201?

Children should be able to play outside, go to school, and enjoy their early years without any worries.
Unfortunately, these beautiful dream images are currently not the reality for our dear Amira. Amira is only five years old and she was recently diagnosed with a brain stem tumor. In medical jargon, this is also called DIPG (Diffuse Intrinsic Pontine Glioma).

DIPG is a rare form of tumor for which no specific treatment is offered in the Netherlands, apart from radiation and chemotherapy

The Semmy Foundation aims to increase the life expectancy and ultimately the chances of survival of children with brainstem cancer. Together with all our donors, we are committed to the fight against this disease. Will you help?

I am Wesley, 31 years old. Married to Martine and last October our first son ‘Milan’ was born.
Stand in life as a bon vivant but also as a fanatic football enthusiast. Since April 2021 I have heard that I am terminally ill, diagnosed with a brain tumor: Diffuse Midline Glioma, WHO grade 4, with a rare H3K27M mutation. Donations are required for ONC201 treatment in France!

I very much hope that with this fundraiser we can raise money to start treatment in France. The money raised is handled carefully and is supervised by several parties. I am very grateful to you for every euro that is donated so that I can continue my treatment and hopefully make many more memories with you!