Help Children with SMA Disease
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Aruuzat was diagnosed with Spinal Muscular Atrophy (SMA) type 1. It is a rare neuromuscular disorder that results in the loss of motor neurons and progressive muscle loss. To have a better future, Aruuzat must receive genetic therapy called Zolgensma! The Zolgensma approval only covers children under 2 years or 30 pounds. Aruuzat is 19 months old. It’s a fight against time. Your donation is highly appreciated!

Tess was born in June 2019. The most beautiful baby, all the trimmings! Dennie and Ilse are proud parents of their first child. Very normal, you will think nothing to worry about… But a few months ago they suddenly received terrible news: after several tests, Tess was diagnosed with a muscle disease called SMA type 2. A serious muscle disease that manifests itself in children between six and eighteen months. Children still learn to sit, but not to stand or walk independently.

How do we want to achieve this? We already have all kinds of plans, such as a spinning event (as soon as the weather is allowed and allowed), a crowdfunding, an auction – everything we can think of to give our little girl and her parents a less anxious life. Will you help us?

Celinka was born in 2020. She was born seemingly healthy, so she was quickly released from the hospital. The parents thought that the most beautiful period of their lives had begun! Unfortunately, after a few weeks, they noticed that something troubling was going on with their daughter. She couldn’t lift her feet. She didn’t wave her hands like the other babies. After numerous medical consultations, many hypotheses emerged, but the worst-case scenario was finally confirmed. The girl suffers from SMA type I. Thanks to many donations, Celinka is participating in gene therapy. It is necessary to continue the intensive rehabilitation. This is a huge expense, the coverage of which is beyond the financial reach of the parents. Rehabilitation is a huge effort, but it produces visible results. Will you help too?